PSC Patients Survey

Do you also want your voice heard in PSC research?

Would you like to have a say in the priority setting for PSC research? And give researchers, regulators and other stakeholders a better idea on what having PSC means in your daily life?

The biggest pan-European PSC Patients Survey that has ever taken place is now closed. We want to thank all respondents for their input. Hundreds of PSC patients filled in the survey, from all corners of the world. Yes, form over 35 countries... . The feedback collected will assist the PSC community to move forward.

Tio see the results of the survey, check out this document: PSC Patients Europe Survey Report

The survey was available in 6 languages:

Deutsch / German

Français / French

Nederlands / Dutch

Norsk / Norwegian

Svenska / Swedish

New sutveys will be posted here in due course.